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Author
Fogarty, Andrea; Patrick Rawstorne; Garrett Prestage; Jeffrey Grierson; Andrew Grulich; Susan Kippax; Heather Worth; Dean Murphy.
Title
Positive Health: Then and Now...Following HIV-Positive People's Lives Over Time
Imprint
National Centre in HIV Social Research, Sydney, 2003, 69 pp
ISBN/ISSN
1-875978-67-4
Description

Monograph 9/2003. Reproduced with kind permission of the National Centre in HIV Social Research.

Abstract

"Positive Health is a longitudinal cohort study of HIV-positive men and women living in NSW and Victoria. A major focus of Positive Health is the impact of HIV and associated treatments on health and, more generally, on the lived experience of People Living with HIV and AIDS (PLWHA) over time. The study is funded by the Commonwealth Department of Health & Ageing and the New South Wales Department of Health, and began recruiting in late 1998. This report covers two data collection periods, which we have called Time 1 (1998/1999) and Time 2 (2000/2001). While 517 people were interviewed at Time 1 or Time 2, this report examines data from the 307
participants who we interviewed at both Time 1 and Time 2. 1Questions that were asked of participants at Time 1 and Time 2 were essentially the same. 2 Conceived in 1997 in the period following the introduction of highly active antiretroviral treatment (HAART), Positive Health was designed to examine the uptake and use of various therapies (including antiretroviral (ARV) therapy), and access to treatment and care among people with HIV in New South Wales and Victoria. In addition, the study focuses on side effects, treatment practices, clinical markers and quality of life. It also explores knowledge of HIV treatments among PLWHA, and pill-taking practices in relation to clinical and bodily experiences of HIV and AIDS. In addition to treatments, Positive Health collects data on identity in relation to HIV serostatus and attachment to PLWHA organisations and HIV-positive communities."

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